After multiple miscarriages and a lifelong battle with autism, Colleen’s family faced their darkest heartbreak when Daragh, their brightest light, passed away at 11.

It was love at first sight. From the moment Paul and I met that night in a local nightclub, there was an unspoken connection—we both knew we had found something extraordinary. Young as we were, we believed with our whole hearts that we were meant to spend our lives together. Our personalities clicked effortlessly, and we dreamed of a future full of laughter, adventure, and unwavering support for each other.

I remember our wedding day like it was yesterday—September 28th, 2002. We were radiantly happy, carrying no cares in the world. Life felt perfect: good jobs, a cozy home, and each other. We balanced one another beautifully. When one of us stumbled, the other was always there to lift us up. Those early days were full of hope, energy, and a deep, unshakable love.

mom and dad taking a selfie on a beach

After a year of marriage, we decided to start a family. Excitement bubbled inside us, and just three months later, we discovered I was pregnant. Our joy was indescribable—until, heartbreakingly, I miscarried at seven weeks. We were devastated, but we carried on, determined to keep our hope alive. A year of trying passed without success, and eventually, we turned to medical help.

brothers standing still long enough for mom to take a picture

We began fertility treatment, and I fell pregnant on Clomid—but sadly, it ended again at eight weeks. By our third year of marriage, we were emotionally drained, struggling to understand why this was happening. Early the following year, we moved to a new home and, in a twist of fate, I found out I was pregnant just five weeks later. This time, hope felt fragile but real, and Paul’s positivity kept me grounded.

Nathan, our first miracle, arrived, filling our hearts completely. Holding him for the first time, Paul looked like the proudest man in the world. Life was beautiful, and we felt whole. Soon after, Daragh was born, healthy and strong, and our family of four was perfect. Our two boys brought unparalleled joy and laughter, and we documented every smile, every milestone, every moment.

dad with his two boy at the beach
son all dressed up in the car

Yet life wasn’t without its struggles. I endured two more miscarriages, including a partial molar pregnancy, and finally decided to give my body a rest. We focused our energy on our boys, but concerns arose when Daragh struggled with speech, social interaction, and sensory sensitivities. Quirky habits and selective eating led us to seek professional advice. Daragh was eventually diagnosed with Autism. While the diagnosis was difficult, it clarified how we could support him. We dedicated ourselves fully to therapies, diets, supplements, and even CBD oil to help with anxiety.

Amid the challenges, life gifted us Naoise, our beautiful daughter. After countless miscarriages, carrying a healthy baby girl seemed almost impossible—but there she was, a symbol of hope and resilience. Later, Layla joined our family, born the day before Christmas Eve in 2015. Our hearts were full. We often reminded the children that God had taken care of the babies we had lost by blessing us with the ones we held now. Life was joyful, chaotic, and deeply blessed.

We adapted everything to Daragh’s needs—early mornings on the beach, sensory rooms at home, and constant reassurance and love. He was affectionate, joyful, and deeply connected to his family. “I’m mommy’s best boy ever,” he would say, and to Paul, “I’m Daddy’s best friend.” His love was pure, even when words were few.

autistic boy posing in front of a bush in a bright lime shirt

But in October 2019, while on vacation in Spain, we noticed Daragh was unwell—lethargic, off his food, and not sleeping well. Back home, his condition worsened, and a hospital visit revealed a shocking truth: he didn’t have pneumonia—he had a huge mass on his lung pressing on his heart. Daragh was diagnosed with Acute Lymphoblastic Leukemia, the most aggressive form of cancer. Our world shattered.

Transferred to Crumlin Children’s Hospital ICU, Daragh fought for his life. Five weeks and five days passed in a coma, with Paul and I by his side, singing to him, holding him close despite the wires. On November 24th, 2019, our beloved Daragh passed away in the arms of angels. The grief was unimaginable—losing him felt like losing a part of ourselves.

mom taking a selfie with her autistic son

Even in the heartbreak, I promised Daragh I would honor him, speak about Autism, and share his story. We turned our Elf on the Shelf into Duca, an elf with Autism, inspired by Daragh’s very first word. Each December, I post videos to celebrate Daragh and educate others, keeping his memory alive. His courage, joy, and love continue to inspire us every day.

Life goes on with our other three children, but we carry Daragh with us always. Through Instagram and initiatives like Daragh’s Balloon Ride, we honor his legacy, sharing our experiences of motherhood, Autism, and grief. Though our hearts are broken, we are grateful for the 11 incredible years we had with him. Daragh taught us what love truly is—a love that endures, strengthens, and transforms, even in the face of unimaginable loss.

mom and dad taking a selfie after the loss of their son

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